DISCLAIMER: WE ARE NOT AFFILIATED TO THE APPG FOR DYSPRAXIA AND THE BELOW DOES NOT CONSTITUTE OFFICIAL GUIDANCE. WE, DYSPRAXIC CIRCLE HAVE CREATED THE BELOW TO HELP ASSIST MEMBERS OF THE DYSPRAXIC COMMUNITY TO SUBMIT THEIR EVIDENCE SHOULD THY LIKE TO.
On the 3rd August 2020 the All Party Parliamentary Group for Dyspraxia announced they were inviting members of the public to submit evidence surrounding their experiences as dyspraxic adults, parents/relations of dyspraxics and professionals who work with dyspraxics .
An All Party Parliamentary Group (APPG) is the name given to a group of MPs from all political parties who meet to discuss, debate and hear evidence on a particular subject or cause.
The APPG for Dyspraxia was set up in 2019 but was disbanded in December 2019 when the general election was called. This is something that happens to all APPGs when an election season begin. The group was re-registered in 2020 abut it has yet to sit and discuss anything.
THE CALL FOR EVIDENCE
Members of the public have until 17:00 on Friday 28 August to submit their evidence. We strongly believe that the experiences (good and bad) of adult dyspraxics need to be heard so that the APPG members learn the realities of the situation facing dyspraxics in the UK today and learn what they have experienced in the past . The APPG provides an opportunity for your stories and experiences to be listened to and be considered in a formal setting with political legitimacy .
We are acutely aware that writing an email telling your experiences can be rather daunting. Where do I start? What do I include? How do I structure it? Will they read it? Will they listen to me? For some dyspraxics this could be the first chance to really share their experiences and that’s a lot of pressure. Here is a link to the APPG press release which explains that you can write to NASEN (the APPG secretariat – who administrate it) if you would like to submit your evidence through a different means.
For those who would like to submit evidence, we have created an email template. This is just to give you an idea of what you could include and how you could structure it. You are more than welcome to use the template as it is and fill it in with your evidence, or you can delete bits of the template or delete the whole template entirely and write it entirely yourself. It is 100% your choice. This template is for those who may feel anxious about writing the letter and anxious about how to start and structure it. Please do not include anything that you do not want to.
The template below is simply a suggestion and some bits might not be appropriate to you..Please do not feel obligated to give any information you an uncomfortable giving. Remember the sub-heading categories in the template are only suggestions.
PLEASE FEEL FREE TO COPY AND PASTE EVERYTHING BELOW INTO A BLANK EMAIL. WHEN YOU ARE HAPPY WITH YOUR LETTER SEND TO email@example.com
My name is [insert name] and I am writing to you today to submit my evidence for inclusion and consideration of the APPG on Dyspraxia in response to your appeal for evidence dated 03/08/2020.
This letter has been written using the ‘APPG Evidence submission template’ which was published on the Dyspraxic Circle website on 04/08/2020. All words that follow are my own and I would be very grateful if you could read and accept it as evidence.
[COULD INCLUDE YOUR NAME, AGE, TOWN/CITY/REGION YOU LIVE IN) ,
MY DIAGNOSIS JOURNEY
[COULD INCLUDE WHEN YOU WERE DIAGNOSED (AGE, BY WHAT PROFESSIONAL, DID IT COST ANYTHING AND HOW IT FELT TO BE LABELLED DYSPRAXIC.)
(IF YOU ARE NOT YET DIAGNOSED – WHAT YOU HAVE DONE TO TRY AND GET DIAGNOSED. WHAT PROFESSIONALS DID YOU REACH OUT TO? HOW HAS IT MADE YOU FEEL? WHAT WOULD A DIAGNOSIS/ASSESSMENT MEAN TO YOU?
[COULD INCLUDE HOW IT AFFECTS YOU.
WHAT CHALLENGES DO YOU EXPERIENCE? WHAT ARE YOUR TRAITS?
MY CHILDHOOD EXPERIENCES
(COULD INCLUDE WHAT IT WAS LIKE TO GROW UP AS A DYSPRAXIC CHILD. DID YOU RECEIVE ANY SUPPORT,
MY EXPERIENCES IN EDUCATION
(COULD INCLUDE WHAT IT WAS LIKE TO GROW UP AS A DYSPRAXIC IN SCHOOL/COLLEGE/UNIVERSITY. DID YOU GET SUPPORT – EXTRA TIME? ASSISTIVE TECHNOLOGY? DID ANY OF THE SUPPORT YOU RECEIVED HELP PARTICULARLY?
WHAT WAS IT LIKE TO BE AROUND OTHER PUPILS? HOW WERE LESSONS? MAKING FRIENDS? DID ANY ELEMENTS OF DYSPRAXIA IMPACT YOUR EDUCATION? WERE YOU BULLIED? DID YOU GET THE GRADES YOU WANTED?
MY JOB HUNTING EXPERIENCES
(COULD INCLUDE YOUR EXPERIENCES OF APPLYING FOR JOBS, JOB INTERVIEW EXPERIENCES. DOES WORDING IN JOB DESCRIPTIONS PUT YOU OFF APPLYING? HAVE YOU HAD A JOB INTERVIEW WHERE THEY MADE REASONABLE ADJUSTMENTS OR SHOWED THEY UNDERSTOOD YOUR DYSPRAXIA?
MY WORKPLACE EXPERIENCES
(COULD INCLUDE YOUR EXPERIENCES WHILST IN A JOB. ARE YOU OPEN ABOUT YOUR DYSPRAXIA? DO YOU RECEIVE WORKPLACE SUPPORT THROUGH ACCESS TO WORK PROGRAMME? IS THERE ANYTHING STOPPING YOU FROM DISCLOSING?
DO YOU RECEIVE REASONABLE ADJUSTMENTS? HAVE YOU HAD A POSITIVE EXPERIENCE IN THE WORKPLACE? HAVE YOU EVER FELT DISCRIMINATED AGAINST? HAVE YOU EVER BEEN MADE REDUNDANT OR SACKED? HAVE YOU EVER BEEN PROMOTED? ARE YOU VALUED BY YOUR EMPLOYER? DO YOU FEEL PEOPLE IN YOUR WORKPLACE UNDERSTAND YOU AND YOUR NEEDS AND APPRECIATE YOUR STRENGTHS?
MY DAILY LIFE AS AN ADULT
(COULD INCLUDE HOW DYSPRAXIA IMPACTS YOUR DAILY LIFE AS AN ADULT? CAN YOU DRIVE? WHAT CHALLENGES DO YOU ENCOUNTER? DO YOU FEEL WELL SUPPORTED?
MY INTERPERSONAL EXPERIENCES
(COULD INCLUDE IF AND HOW DYSPRAXIA HAS IMPACTED YOUR RELATIONSHIPS WITH OTHER PEOPLE)
MY MENTAL HEALTH
(COULD INCLUDE EVIDENCE OF HOW YOUR EXPERIENCES HAVE IMPACTED YOUR MENTAL HEALTH. HAVE YOU EVER RECEIVED MENTAL HEALTH SUPPORT? HAVE YOU TRIED TO ACCESS SUPPORT? DO YOU FEEL YOU DO NOT NEED SUPPORT?
MY PHYSICAL HEALTH
(COULD INCLUDE EVIDENCE OF HOW YOUR DYSPRAXIA IMPACTS YOUR PHYSICAL HEALTH TOO – FATIGUE? CO-ORDINATION? PERFORMING PHYSICAL TASKS?
(HOW DO YOU FEEL ABOUT BEING DYSPRAXIC? HAS THIS CHANGED OVER TIME? CAN IT BE A STRENGTH?
MY HOPE FOR THE FUTURE
(WHAT WOULD YOU LIKE TO CHANGES WOULD YOU LIKE TO SEE IN THE FUTURE? WHAT DOES POSITIVE PROGRESS LOOK LIKE? WHAT CHANGES WOULD HELP ME THRIVE?)
Thank you for taking the time to read what I have to say and thank you for inviting me to share this with you. I hope what I have written will be considered both appropriate and useful and I look forward to seeing how the APPG on Dyspraxia progresses in the coming months and years. If you would like any further information then please do get in tocuh.